Michelle O’Sullivan (Occ. Therapist) 20/5/20 Michelle O’Sullivan (Occ. Therapist) 20/5/20

Genome, we have a problem: diagnosis change

How would you feel if tomorrow your doctor called to say "diagnosis change"! It's like someone calling, "plot twist", right in the middle of your life?

Michelle O’Sullivan (Occ. Therapist) 25/2/19 Michelle O’Sullivan (Occ. Therapist) 25/2/19

Rare Diseases: What type of Zebra am I?

Knowing you have symptoms of a condition as well as genetic mutations, but still not having a name for it can leave you wondering, what type of zebra am I?

Michelle O’Sullivan (Occ. Therapist) 25/2/19 Michelle O’Sullivan (Occ. Therapist) 25/2/19

Rare Diseases: A double-zebra

On Rare Disease Day, 2019, Tianne shares some of her story about living as a double-zebra - with EDS & Marfan Syndrome!

Liz Harvie 1/3/18 Liz Harvie 1/3/18

Finally getting a diagnosis

Liz Harvie 1/3/18 Liz Harvie 1/3/18

Dear Ehlers-Danlos Syndrome

Lucy Atkinson 8/2/18 Lucy Atkinson 8/2/18

Learning you have Marfan Syndrome

Michelle O’Sullivan (Occ. Therapist) 5/2/18 Michelle O’Sullivan (Occ. Therapist) 5/2/18

HSD, JHS, hEDS... oh my!

Michelle O’Sullivan (Occ. Therapist) 13/3/17 Michelle O’Sullivan (Occ. Therapist) 13/3/17

You are not your diagnosis

Michelle O’Sullivan 13/2/17 Michelle O’Sullivan 13/2/17

To hide or not to hide? That is the question

Michelle O’Sullivan (Occ. Therapist) 21/11/16 Michelle O’Sullivan (Occ. Therapist) 21/11/16

Not all 'zebras' are 'zebras'

Michelle O’Sullivan (Occ. Therapist) 26/9/16 Michelle O’Sullivan (Occ. Therapist) 26/9/16

I just got a diagnosis and no one understands!

Michelle O’Sullivan (Occ. Therapist) 5/6/16 Michelle O’Sullivan (Occ. Therapist) 5/6/16

A letter: For when you're really hurting...