Ehlers-Danlos Syndrome, Loeys-Dietz Syndrome, Mental Health Michelle O’Sullivan (Occ. Therapist) 20/5/20 Ehlers-Danlos Syndrome, Loeys-Dietz Syndrome, Mental Health Michelle O’Sullivan (Occ. Therapist) 20/5/20

Genome, we have a problem: diagnosis change

How would you feel if tomorrow your doctor called to say "diagnosis change"! It's like someone calling, "plot twist", right in the middle of your life?

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Disability Awareness, Ehlers-Danlos Syndrome, Mindfulness Michelle O’Sullivan (Occ. Therapist) 25/2/19 Disability Awareness, Ehlers-Danlos Syndrome, Mindfulness Michelle O’Sullivan (Occ. Therapist) 25/2/19

Rare Diseases: What type of Zebra am I?

Knowing you have symptoms of a condition as well as genetic mutations, but still not having a name for it can leave you wondering, what type of zebra am I?

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Disability Awareness, Ehlers-Danlos Syndrome, Marfan Syndrome, Understanding Michelle O’Sullivan (Occ. Therapist) 25/2/19 Disability Awareness, Ehlers-Danlos Syndrome, Marfan Syndrome, Understanding Michelle O’Sullivan (Occ. Therapist) 25/2/19

Rare Diseases: A double-zebra

On Rare Disease Day, 2019, Tianne shares some of her story about living as a double-zebra - with EDS & Marfan Syndrome!

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Adults, Anxiety, Chronic Illness, Emotional Impacts, Grief, Identity, Pacing, Psychology & Couns..., Thought Management Liz Harvie 1/3/18 Adults, Anxiety, Chronic Illness, Emotional Impacts, Grief, Identity, Pacing, Psychology & Couns..., Thought Management Liz Harvie 1/3/18

Finally getting a diagnosis

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Adapting, Adults, Chronic Illness, Community Liz Harvie 1/3/18 Adapting, Adults, Chronic Illness, Community Liz Harvie 1/3/18

Dear Ehlers-Danlos Syndrome

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Adults, Chronic Illness, Emotional Impacts, Medical Experiences Lucy Atkinson 8/2/18 Adults, Chronic Illness, Emotional Impacts, Medical Experiences Lucy Atkinson 8/2/18

Learning you have Marfan Syndrome

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Ehlers-Danlos Syndrome, Hypermobility Information, Hypermobility Spectrum..., Joint Hypermobility Sy... Michelle O’Sullivan (Occ. Therapist) 5/2/18 Ehlers-Danlos Syndrome, Hypermobility Information, Hypermobility Spectrum..., Joint Hypermobility Sy... Michelle O’Sullivan (Occ. Therapist) 5/2/18

HSD, JHS, hEDS... oh my!

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Adults, Chronic Illness, Emotional Impacts, Identity Michelle O’Sullivan (Occ. Therapist) 13/3/17 Adults, Chronic Illness, Emotional Impacts, Identity Michelle O’Sullivan (Occ. Therapist) 13/3/17

You are not your diagnosis

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Adults, Parents, Teens, Young Adults Michelle O’Sullivan 13/2/17 Adults, Parents, Teens, Young Adults Michelle O’Sullivan 13/2/17

To hide or not to hide? That is the question

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Adults, Hypermobility Information, Hypermobility Spectrum... Michelle O’Sullivan (Occ. Therapist) 21/11/16 Adults, Hypermobility Information, Hypermobility Spectrum... Michelle O’Sullivan (Occ. Therapist) 21/11/16

Not all 'zebras' are 'zebras'

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Adults, Parents, Teens, Young Adults Michelle O’Sullivan (Occ. Therapist) 26/9/16 Adults, Parents, Teens, Young Adults Michelle O’Sullivan (Occ. Therapist) 26/9/16

I just got a diagnosis and no one understands!

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Adults, Emotional Impacts, Mental Health, Parents Michelle O’Sullivan (Occ. Therapist) 5/6/16 Adults, Emotional Impacts, Mental Health, Parents Michelle O’Sullivan (Occ. Therapist) 5/6/16

A letter: For when you're really hurting...

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