Ehlers-Danlos Syndrome, Loeys-Dietz Syndrome, Mental Health Michelle O’Sullivan (Occ. Therapist) 20/5/20 Ehlers-Danlos Syndrome, Loeys-Dietz Syndrome, Mental Health Michelle O’Sullivan (Occ. Therapist) 20/5/20

Genome, we have a problem: diagnosis change

How would you feel if tomorrow your doctor called to say "diagnosis change"! It's like someone calling, "plot twist", right in the middle of your life?

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Disability Awareness, Ehlers-Danlos Syndrome, Mindfulness Michelle O’Sullivan (Occ. Therapist) 25/2/19 Disability Awareness, Ehlers-Danlos Syndrome, Mindfulness Michelle O’Sullivan (Occ. Therapist) 25/2/19

Rare Diseases: What type of Zebra am I?

Knowing you have symptoms of a condition as well as genetic mutations, but still not having a name for it can leave you wondering, what type of zebra am I?

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Disability Awareness, Ehlers-Danlos Syndrome, Marfan Syndrome, Understanding Michelle O’Sullivan (Occ. Therapist) 25/2/19 Disability Awareness, Ehlers-Danlos Syndrome, Marfan Syndrome, Understanding Michelle O’Sullivan (Occ. Therapist) 25/2/19

Rare Diseases: A double-zebra

On Rare Disease Day, 2019, Tianne shares some of her story about living as a double-zebra - with EDS & Marfan Syndrome!

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Adults, Community, Emotional Impacts Michelle O’Sullivan (Occ. Therapist) 7/6/18 Adults, Community, Emotional Impacts Michelle O’Sullivan (Occ. Therapist) 7/6/18

Building each other up: Why we need community

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Articles, Community, Disability, Disability Awareness Megan Taylor 24/5/18 Articles, Community, Disability, Disability Awareness Megan Taylor 24/5/18

When Modern Feminism Isn’t Inclusive of Disability

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Adults, Chronic Illness, Disability Awareness, Ehlers-Danlos Syndrome, Hypermobility Spectrum..., Joint Hypermobility Sy..., Loeys-Dietz Syndrome, Marfan Syndrome, Pain Management Michelle O’Sullivan (Occ. Therapist) 13/5/18 Adults, Chronic Illness, Disability Awareness, Ehlers-Danlos Syndrome, Hypermobility Spectrum..., Joint Hypermobility Sy..., Loeys-Dietz Syndrome, Marfan Syndrome, Pain Management Michelle O’Sullivan (Occ. Therapist) 13/5/18

Top 10 most challenging symptoms of hypermobility conditions

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Adults, Ehlers-Danlos Syndrome, Hypermobility Information, Hypermobility Spectrum..., Joint Hypermobility Sy..., Loeys-Dietz Syndrome, Marfan Syndrome Michelle O’Sullivan (Occ. Therapist) 8/5/18 Adults, Ehlers-Danlos Syndrome, Hypermobility Information, Hypermobility Spectrum..., Joint Hypermobility Sy..., Loeys-Dietz Syndrome, Marfan Syndrome Michelle O’Sullivan (Occ. Therapist) 8/5/18

The Burger Joint

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Adapting, Chronic Illness, Disability, Emotional Impacts, Grief, Identity, Independence, Mental Health, Pacing Michelle O’Sullivan (Occ. Therapist) 6/4/18 Adapting, Chronic Illness, Disability, Emotional Impacts, Grief, Identity, Independence, Mental Health, Pacing Michelle O’Sullivan (Occ. Therapist) 6/4/18

Hypermobility: The condition that takes away...

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Adapting, Adults, Disability, Emotional Impacts, Mindfulness, Pacing, Pain Management, Psychology & Couns..., Therapy Options Michelle O’Sullivan (Occ. Therapist) 29/3/18 Adapting, Adults, Disability, Emotional Impacts, Mindfulness, Pacing, Pain Management, Psychology & Couns..., Therapy Options Michelle O’Sullivan (Occ. Therapist) 29/3/18

4 keys to hypermobility pain management

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Adapting, Chronic Illness, Pain Management Erica Ortiz 15/3/18 Adapting, Chronic Illness, Pain Management Erica Ortiz 15/3/18

The reality of a flare-up: Living with EDS & Dysautonomia

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Adults, Management Skills, Pacing, Pain Management Megan Taylor 8/3/18 Adults, Management Skills, Pacing, Pain Management Megan Taylor 8/3/18

8 Tips for planning a solo day out, like a boss!

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Adults, Anxiety, Chronic Illness, Emotional Impacts, Grief, Identity, Pacing, Psychology & Couns..., Thought Management Liz Harvie 1/3/18 Adults, Anxiety, Chronic Illness, Emotional Impacts, Grief, Identity, Pacing, Psychology & Couns..., Thought Management Liz Harvie 1/3/18

Finally getting a diagnosis

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Adapting, Adults, Chronic Illness, Community Liz Harvie 1/3/18 Adapting, Adults, Chronic Illness, Community Liz Harvie 1/3/18

Dear Ehlers-Danlos Syndrome

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Adults Erica Ortiz 25/1/18 Adults Erica Ortiz 25/1/18

6 Tips to Prepare You for Mystery Injuries

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Adults Lucy Atkinson 19/1/18 Adults Lucy Atkinson 19/1/18

Making the most of time indoors (when you have a chronic condition)

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Adapting, Adults, Chronic Illness, Disability Awareness Erica Ortiz 11/1/18 Adapting, Adults, Chronic Illness, Disability Awareness Erica Ortiz 11/1/18

Living with Tubes (of all kinds)

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Adapting, Adults, Anxiety, Boundaries, Emotional Impacts, Management Skills, Mental Health Michelle O’Sullivan 21/12/17 Adapting, Adults, Anxiety, Boundaries, Emotional Impacts, Management Skills, Mental Health Michelle O’Sullivan 21/12/17

5 Tips for Managing Christmas Day Anxiety

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Adapting, Adults, Disability, Emotional Impacts, Management Skills, Mental Health, Pacing, Pain Management Michelle O’Sullivan 14/12/17 Adapting, Adults, Disability, Emotional Impacts, Management Skills, Mental Health, Pacing, Pain Management Michelle O’Sullivan 14/12/17

All I want for Christmas is for you to read this post

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Adults, Chronic Illness, Emotional Impacts, Pacing, Pain Management Michelle O’Sullivan 6/12/17 Adults, Chronic Illness, Emotional Impacts, Pacing, Pain Management Michelle O’Sullivan 6/12/17

What do you need people to understand & do for you this Christmas?

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Adapting, Adults, Pacing, Pain Management Michelle O’Sullivan 29/11/17 Adapting, Adults, Pacing, Pain Management Michelle O’Sullivan 29/11/17

Seven of the Best General Aids for Hypermobility

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